Once thought to be a rare disease, Sjogren's is now recognized as one of the most prevalent autoimmune diseases, affecting an estimated 1 to 4 million people in the United States. Traditionally thought to be characterized by dry eyes and dry mouth, Sjogren's is now recognized as a systemic autoimmune disease that can impact moisture-producing glands, lungs, the digestive tract, the nervous system, and more.
In 1998, Sjogren's Awareness Month was established when Congresswoman Louise Slaughter read it into the Congressional Record. Sjogren's awareness has come a long way since being seen as a dryness syndrome to being recognized as a systemic disease. In addition to the dryness associated with the disease, a majority of patients also experience musculoskeletal pain and fatigue, along with a range of other symptoms. The medical field is now increasing moving toward using the terminology Sjogren's "disease" as opposed to "syndrome."
In our registry, Sjogren's is the third most common disease, following autoimmune thyroiditis and rheumatoid arthritis. Moreover, patients with Sjogren's are predominantly women (97% in our registry). One common theme we hear from registrants is the length of time it can take to obtain a Sjogren's diagnosis. Many are initially misdiagnosed or dismissed by physicians. In honor of Sjogren's Awareness Month, we are asking everyone to share their diagnostic journey. You can share your story by contacting us or by making a video here.
To support the Autoimmune Registry, please share our information with others with autoimmune diseases. Donations are also greatly appreciated!
