Past Network Webinars

September 19th, 2024 with Yan Valle from Vitiligo Research Foundation

June 20th, 2024 with Sara Loud from Accelerated Cure Project (ACP)

May 23rd, 2024 with Becky Dennis from Encephalitis411

April 18th, 2024 with Tony Thornburn from Behçet's UK

March 21st, 2024 with Christy Jagdfeld from Brain Inflammation Collaborative, Inc.

View PowerPoint Here

February 15th, 2024 with Linda Tannenbaum from Open Medicine Foundation

January 18th, 2024 with H. Timothy Hsiao from Solve M.E.

November 22nd, 2023 with Daniel DeFabio and Mary Morlino from Global Genes

October 25th, 2023 with Harsha K. Rajasimha from Indo US Rare and Mari Wagner from IAES

Featured

Oct 9, 2024

How can autoimmune diseases affect children and families?

Oct 9, 2024

Autoimmune diseases are often thought of as diseases affecting adults and the elderly. However, there are various autoimmune diseases that can begin in childhood, such as juvenile idiopathic arthritis and juvenile dermatomyositis.

Oct 9, 2024

Oct 2, 2024

Attend our webinar about CAR-T therapy with Dr. Mamatha Pasnoor!

Oct 2, 2024

Autoimmune Registry is hosting a webinar on October 7th, 2024, at 4:00 pm EST to discuss new technologies used in autoimmune disease clinical trials. We wanted to take this time to introduce one of our presenters, Dr. Mamatha Pasnoor!

Oct 2, 2024

Sep 26, 2024

Learn about CAR-T therapy and clinical trials in our next webinar!

Sep 26, 2024

Sep 19, 2024

Emily's wAIHA diagnostic journey

Sep 19, 2024

Here at the Autoimmune Registry, we believe that sharing stories is important for bringing awareness to autoimmune diseases. The story below is from one of our registrants, Emily, who kindly allowed us to share her story.

Sep 19, 2024

Sep 18, 2024

How do antibodies affect muscles in myositis patients?

Sep 18, 2024

This past June, a team of international researchers, led by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), uncovered a novel mechanism by which myositis autoantibodies contribute to disease progression.

Sep 18, 2024

Sep 11, 2024

What are your symptoms for autoimmune hemolytic anemia?

Sep 11, 2024

Autoimmune hemolytic anemia (AIHA) is a condition where the immune system mistakenly destroys red blood cells, leading to anemia. This can occur in warmer or colder temperatures depending on the type of AIHA a patient has. Recognizing the symptoms of the disease is crucial for early diagnosis and effective management.

Sep 11, 2024

September Webinar Monday September 16 2024 630-730pm CST CAR-T Therapies Join the Myasthenia Gravis Association (MGA) and Mazen Dimachkie MD FAAN FANA University of K.png

Sep 11, 2024

What's the relationship between disease severity and fatigue in myasthenia gravis?

Sep 11, 2024

Fatigue is a common symptom among several autoimmune diseases and can, at times, interfere with daily activities. One autoimmune disease that has fatigue as a common symptom is myasthenia gravis.

Sep 11, 2024

Sep 5, 2024

Share your story for Alopecia Awareness Month!

Sep 5, 2024

September is Alopecia Awareness Month! Alopecia occurs when the immune system attacks hair follicles and causes hair loss, usually affecting the hair on one's scalp or face.

Sep 5, 2024

Aug 28, 2024

How do lupus autoantibodies target the heart?

Aug 28, 2024

Inflammation caused by lupus can affect many different body systems such as the skin, kidneys, blood cells, brain, lungs, and heart. Because of the complexity of the disease, lupus has been difficult to study.

Aug 28, 2024

Aug 27, 2024

What are some common comorbid conditions for autoimmune hemolytic anemia?

Aug 27, 2024

Autoimmune hemolytic anemia (AIHA) can not only be classified into warm-antibody AIHA (wAIHA) or cold-antibody AIHA, but it can also be classified as primary or secondary AIHA.

Aug 27, 2024