Protecting Your Privacy

ARI protects your data and your privacy:

• We do not give your personal identifying data to anyone. 

• We contact YOU when there is a study you might qualify for.

• You decide whether to contact the researchers.

• We never send patient-level data to researchers.

ARI does not share patient-level data unless you authorize us to do so in writing. We do share aggregate data, such as the number of people with a specific disease.

If you have received an email from us about a research study, it means we are telling you about the study.  We have NOT told the people running the study about you.

We have not given them your email or your data.

That said, we encourage you to participate in research. It is the only way we can help scientists understand autoimmune disease and ensure new treatments are developed for patients.