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Autoimmune Registry Network

Autoimmune Registry Network

The Autoimmune Registry is connecting organizations to share our collective knowledge and create a united front in the fight against autoimmune diseases. As a class, autoimmune diseases affect millions of Americans, and they can be life threatening or significantly impair the quality of life of patients. Despite having almost the same prevalence as cancer, awareness for autoimmune diseases have been fractured, with many believing the diseases to be rare. Together, we can bring the kind of recognition autoimmune diseases deserve.

Join the Autoimmune Registry Network today!!

Submit the form below and we will reach out to schedule a meeting with your organization. Review our Network Agreement.

FAQ:

How do I join the Autoimmune Registry Network?

What happens when I join the Network?

  • Your organization will be listed on our Network Members page

  • You will receive a customized report on your organization’s autoimmune disease, which you can share with your members. The report will include statistics on:

    • Symptoms reported by patients;

    • Medications taken by patients;

    • Lab tests and ranges from patients;

    • Other diseases comorbid with your organization’s disease; and

    • Other trends identified from the NIH’s All of Us database

  • Your members will be eligible to apply for patient stipends for attending advocacy conferences

  • By being a Network member, your organization will also get to vote on research initiatives funded by the Autoimmune Registry