Autoimmune Registry Scientific Advisors
The Autoimmune Registry is deeply grateful for the guidance provided by our physician-scientist advisors:
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The Autoimmune Registry is advised by experts in the field of informatics, rheumatology, immunology, dermatology, neurology, and cardiology. Our experts hail from the Mayo Clinic, National Institute of Environmental Health Sciences, Harvard, Weil-Cornell, and University of Southern California. These Scientific Advisors advise us on the definition of autoimmune diseases, our list of autoimmune diseases, research on the prevalence of autoimmune diseases, and the collection of longitudinal data from autoimmune disease patients.
The Autoimmune Registry is deeply grateful for the guidance provided by our physician-scientist advisors:
Autoimmune diseases are often thought of as diseases affecting adults and the elderly. However, there are various autoimmune diseases that can begin in childhood, such as juvenile idiopathic arthritis and juvenile dermatomyositis.
Autoimmune Registry is hosting a webinar on October 7th, 2024, at 4:00 pm EST to discuss new technologies used in autoimmune disease clinical trials. We wanted to take this time to introduce one of our presenters, Dr. Mamatha Pasnoor!
Autoimmune Registry is hosting a webinar on October 7th, 2024, at 4:00 pm EST to discuss new technologies used in autoimmune disease clinical trials. We wanted to take this time to introduce one of our presenters, Dr. Mazen M. Dimachkie!
Here at the Autoimmune Registry, we believe that sharing stories is important for bringing awareness to autoimmune diseases. The story below is from one of our registrants, Emily, who kindly allowed us to share her story.
This past June, a team of international researchers, led by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), uncovered a novel mechanism by which myositis autoantibodies contribute to disease progression.
Autoimmune hemolytic anemia (AIHA) is a condition where the immune system mistakenly destroys red blood cells, leading to anemia. This can occur in warmer or colder temperatures depending on the type of AIHA a patient has. Recognizing the symptoms of the disease is crucial for early diagnosis and effective management.
Fatigue is a common symptom among several autoimmune diseases and can, at times, interfere with daily activities. One autoimmune disease that has fatigue as a common symptom is myasthenia gravis.
September is Alopecia Awareness Month! Alopecia occurs when the immune system attacks hair follicles and causes hair loss, usually affecting the hair on one's scalp or face.
Inflammation caused by lupus can affect many different body systems such as the skin, kidneys, blood cells, brain, lungs, and heart. Because of the complexity of the disease, lupus has been difficult to study.
Autoimmune hemolytic anemia (AIHA) can not only be classified into warm-antibody AIHA (wAIHA) or cold-antibody AIHA, but it can also be classified as primary or secondary AIHA.