Lichen Sclerosus (LS) is a chronic inflammatory skin condition that causes patches of skin to look white, thickened, and crinkly around the genital and anal areas. While this condition can occur in both men and women, it is more commonly diagnosed in women. The exact prevalence of LS is unknown, but it is estimated that between 1 in 300 and 1 in 1,000 individuals are affected. Although LS is relatively rare, there is a possibility that the low prevalence is due to the condition being underdiagnosed.
Although the cause of LS is unknown, many researchers believe that the cause is immune-mediated, especially since many individuals who have LS commonly have other autoimmune diseases such as alopecia, vitiligo, and type 1 diabetes. Even though LS is a life-long condition with no cure, many treatments can be used to reduce and, in some cases, eliminate symptoms. Some treatments are topical steroids, oral immunosuppressants, topical and oral retinoids, and more. If you want to read more about what life is like with LS, read Heather Morgan Shott's story on how she received her diagnosis and how she lives with it.
The Autoimmune Registry recently partnered with Lichen Sclerosus Support Network (LSSN), which stands as a beacon of support for individuals and partners navigating the complexities of life with Lichen Sclerosus (LS). This non-profit organization goes beyond providing mere information–it empowers those affected by LS to thrive. Check out LSSN's blog that posts every Tuesday that educate individuals about LS and discusses treatments, sexual health, mental health, and many other topics.
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