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Volunteer

There are many ways to volunteer to help us. Please contact us and tell us what your educational background is (high school, college, grad school, PhDs, EVERYONE can help!) and if it’s appropriate, tell us how autoimmune disease has affected you or a loved one.

We will get back to you within a day or 2. (Please remember we are an all-volunteer organization.)

 
Featured
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How can autoimmune diseases affect children and families?

Autoimmune diseases are often thought of as diseases affecting adults and the elderly. However, there are various autoimmune diseases that can begin in childhood, such as juvenile idiopathic arthritis and juvenile dermatomyositis.

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Attend our webinar about CAR-T therapy with Dr. Mamatha Pasnoor!

Autoimmune Registry is hosting a webinar on October 7th, 2024, at 4:00 pm EST to discuss new technologies used in autoimmune disease clinical trials. We wanted to take this time to introduce one of our presenters, Dr. Mamatha Pasnoor!

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Learn about CAR-T therapy and clinical trials in our next webinar!

Autoimmune Registry is hosting a webinar on October 7th, 2024, at 4:00 pm EST to discuss new technologies used in autoimmune disease clinical trials. We wanted to take this time to introduce one of our presenters, Dr. Mazen M. Dimachkie!

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Emily's wAIHA diagnostic journey

Here at the Autoimmune Registry, we believe that sharing stories is important for bringing awareness to autoimmune diseases. The story below is from one of our registrants, Emily, who kindly allowed us to share her story.

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How do antibodies affect muscles in myositis patients?

This past June, a team of international researchers, led by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), uncovered a novel mechanism by which myositis autoantibodies contribute to disease progression.

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What are your symptoms for autoimmune hemolytic anemia?

Autoimmune hemolytic anemia (AIHA) is a condition where the immune system mistakenly destroys red blood cells, leading to anemia. This can occur in warmer or colder temperatures depending on the type of AIHA a patient has. Recognizing the symptoms of the disease is crucial for early diagnosis and effective management.

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September Webinar Monday September 16 2024 630-730pm CST CAR-T Therapies Join the Myasthenia Gravis Association (MGA) and Mazen Dimachkie MD FAAN FANA University of K.png
What's the relationship between disease severity and fatigue in myasthenia gravis?

Fatigue is a common symptom among several autoimmune diseases and can, at times, interfere with daily activities. One autoimmune disease that has fatigue as a common symptom is myasthenia gravis.

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Share your story for Alopecia Awareness Month!

September is Alopecia Awareness Month! Alopecia occurs when the immune system attacks hair follicles and causes hair loss, usually affecting the hair on one's scalp or face.

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How do lupus autoantibodies target the heart?

Inflammation caused by lupus can affect many different body systems such as the skin, kidneys, blood cells, brain, lungs, and heart. Because of the complexity of the disease, lupus has been difficult to study.

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What are some common comorbid conditions for autoimmune hemolytic anemia?

Autoimmune hemolytic anemia (AIHA) can not only be classified into warm-antibody AIHA (wAIHA) or cold-antibody AIHA, but it can also be classified as primary or secondary AIHA.

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