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54 years and still moving forward...

Always hungry…

For me autoimmune disease has been a long journey, often forcing me to look to heaven and say “God, when we meet you are going to have to explain why I had to endure this.”

When I was 6 years old, my mom noticed I was eating sugar from the sugar bowl and was continually hungry. I also developed a tremor and complained about being hot, and I was always tired.  The first doctor my mom brought me to see told her I had “mental” issues. That just angered my mom!  She found another doctor, and following a visit to a hospital and an examination by specialists, they diagnosed me with Graves’ disease.

Russell Hall with his family

Russell Hall with his family

At that time, my mom was not aware that Graves’ disease is an autoimmune disease.  

I managed to live OK with Graves’ disease, but when I was 17, my blood glucose started misbehaving.  After 2 glucose tolerance test and many X-Rays to look at my pituitary gland, I was diagnosed with type 1 diabetes.

“Hey God, what the heck!!!!”

I had huge energy demands, and my family and work colleagues watched as I ate large amounts of sugar, sweets (candy) and high carb foods. My mom was worried. My uncle had died 6 years earlier from an extreme event (I’m not sure what is was). He was a type 1 diabetic. My mom quietly started the whole family on a diet suitable for a type 1 diabetic. News also got through to my colleagues at work and the scrutiny of my diet was intense. I became really good at sneaking in extra energy during the period before my thyroid was removed. My thyroid was removed when I was 19.

Heart disease, asthma, and more

But a few years down the road, my heart dived into the fray: I was diagnosed with supraventricular tachycardia*. Nobody was sure if it was related to any of my other conditions, but it was not fun. I got treatment in April 1994 and at least that problem was solved.

I then developed asthma and often wonder if this was the precursor to being diagnosed with rheumatoid arthritis (RA) when I was 56. I initially though I was suffering nerve damage from the diabetes even though I had been in great control of glucose and insulin levels. That was overturned by my endocrinologist. My primary care doctor, an astute and experienced man, quickly discovered I had RA and I went directly into treatment.

The interesting outcome is that prior to treatment for RA I had many events related to the asthma. Since I started treatment for RA I have had not and the asthma and diabetes is considered well controlled.

A long and difficult journey, but moving forward

Autoimmune disease has been a long and difficult journey for me and my family. I have not allowed it to stop me reaching most of my goals. Being positive all the time has not been possible and I have been diagnosed with major depressive order. This is also well managed now and thanks to my fantastic wife, I have committed to continuing to move forward.

Being able to share this story helps me, and I hope others facing the same challenges realize that people with severe chronic conditions can thrive, and I am grateful for that.

Russell Hall


* Supraventricular tachycardia is not an autoimmune disease, but is associated with autoimmune diseases, especially rheumatic fever